Version: 7.0.0 | Published: 8 Oct 2024 | Updated: 425 days ago
Trusted Research Environment for CVD-COVID-UK (Wales + Census)
Dataset
Documentation
Associated Media:
Description:
CVD-COVID-UK, co-ordinated by the British Heart Foundation (BHF) Data Science Centre (https://bhfdatasciencecentre.org/), is one of the NIHR-BHF Cardiovascular Partnership’s National Flagship Projects.
CVD-COVID-UK aims to understand the relationship between COVID-19 and cardiovascular diseases through analyses of de-identified, pseudonymised, linked, nationally collated health datasets across the four nations of the UK. The consortium has over 400 members across more than 50 institutions including data custodians, data scientists and clinicians, all of whom have signed up to an agreed set of principles with an inclusive, open and transparent ethos.
Approved researchers access data within secure trusted/secure research environments (TREs/SDEs) provided by NHS England (England), the National Safe Haven (Scotland), the Secure Anonymised Information Linkage (SAIL) Databank (Wales) and the Honest Broker Service (Northern Ireland). A dashboard of datasets available in each nation’s TRE can be found here: https://bhfdatasciencecentre.org/areas/cvd-covid-uk-covid-impact/
This dataset represents the linked datasets in SAIL Databank’s TRE for Wales and contains the following datasets:
• Welsh Longitudinal GP Dataset - Welsh Primary Care (Daily COVID codes only) (GPCD)
• Welsh Longitudinal General Practice Dataset (WLGP) - Welsh Primary Care
• Critical Care Dataset (CCDS)
• Emergency Department Dataset Daily (EDDD)
• Emergency Department Dataset (EDDS)
• Outpatient Database for Wales (OPDW)
• Outpatient Referral (OPRD)
• Patient Episode Dataset for Wales (PEDW)
• COVID-19 Test Results (PATD)
• COVID-19 Test Trace and Protect (CTTP) - Legacy
• COVID-19 Shielded People List (CVSP)
• SARS-CoV-2 viral sequencing data (COG-UK data)-Lineage/Variant Data-Wales (CVSD)
• Covid Vaccination Dataset (CVVD)
• Annual District Death Daily (ADDD)
• Annual District Death Extract (ADDE)
• COVID-19 Consolidated Deaths (CDDS)
• Intensive Care National Audit and Research Centre (ICCD) - Legacy - COVID only
• Intensive Care National Audit and Research Centre (ICNC)
• Welsh Dispensing Dataset (WDDS) - Legacy
• Annual District Birth Extract (ADBE)
• Maternity Indicators Dataset (MIDS)
• National Community Child Health Database (NCCHD)
• Care Home Dataset (CARE)
• Congenital Anomaly Register and Information Service (CARS)
• Referral to Treatment Times (RTTD)
• SAIL Dementia e-Cohort (SDEC)
• Welsh Ambulance Services NHS Trust (WASD)
• Welsh Demographic Service Dataset (WDSD)
• Welsh Results Reports Service (WRRS)
• ONS 2011 Census Wales (CENW)
Coverage
Spatial:
Wales
Typical Age Range:
0-150
Follow Up:
Other
Pathway:
Linked care record across primary, secondary and tertiary care
Provenance
Origin
Purposes:
- Care
- Audit
- Disease registry
- Research cohort
- Other
Collection Situations:
- Clinic
- Primary care - Clinic
- Secondary care - Accident and Emergency
- Secondary care - Outpatients
- Secondary care - In-patients
- Community
- Prescribing - Community pharmacy
- Secondary care - ICU
- Prescribing - Hospital
Temporal
Accrual Periodicity:
Quarterly
Start Date:
01 January 1990
Time Lag:
Variable
Accessibility
Access
Access Service:
Data is accessed within the SAIL Databank under the arrangements in place with
the BHF Data Science Centre for CVD-COVID-UK
Delivery Lead Time:
1-2 months
Jurisdictions:
GB
Data Controller:
SAIL Databank
Data Processor:
SAIL Databank
Usage
Data Use Limitations:
Research-specific restrictions
Data Use Requirements:
- Collaboration required
- Institution-specific restrictions
- Project-specific restrictions
- Publication required
- Time limit on use
- User-specific restriction
Format and Standards
Vocabulary Encoding Schemes:
- OPCS4
- READ
- DM+D
- ICD10
- OTHER
- NHS WALES NATIONAL CODES
Conforms To:
NHS WALES DATA DICTIONARY
Languages:
en
Formats:
SQL Database Table
Enrichment and Linkage
Derivations:
- Welsh Longitudinal GP Dataset - Welsh Primary Care (Daily COVID codes only) (GPCD)
- Welsh Longitudinal General Practice Dataset (WLGP) - Welsh Primary Care
- Critical Care Dataset (CCDS)
- Emergency Department Dataset Daily (EDDD)
- Emergency Department Dataset (EDDS)
- Outpatient Database for Wales (OPDW)
- Outpatient Referral (OPRD)
- Patient Episode Dataset for Wales (PEDW)
- COVID-19 Test Results (PATD)
- COVID-19 Test Trace and Protect (CTTP) - Legacy
- COVID-19 Shielded People List (CVSP)
- SARS-CoV-2 viral sequencing data (COG-UK data)-Lineage/Variant Data-Wales (CVSD)
- Covid Vaccination Dataset (CVVD)
- Annual District Death Daily (ADDD)
- Annual District Death Extract (ADDE)
- COVID-19 Consolidated Deaths (CDDS)
- Intensive Care National Audit and Research Centre (ICCD) - Legacy - COVID only
- Intensive Care National Audit and Research Centre (ICNC)
- Welsh Dispensing Dataset (WDDS) - Legacy
- Annual District Birth Extract (ADBE)
- Maternity Indicators Dataset (MIDS)
- National Community Child Health Database (NCCHD)
- Care Home Dataset (CARE)
- Congenital Anomaly Register and Information Service (CARS)
- Referral to Treatment Times (RTTD)
- SAIL Dementia e-Cohort (SDEC)
- Welsh Ambulance Services NHS Trust (WASD)
- Welsh Demographic Service Dataset (WDSD)
- Welsh Results Reports Service (WRRS)
- ONS 2011 Census Wales (CENW)
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Some datasets cover the estimated size of the population, although distinct counts over time may be in excess of this due to population turnover, population movement and in a very small proportion there may be duplication. https://bhfdsc.github.io/documentation/docs/dataset_overview/dataset_summary_table
3200000
Distinct Count of IDs
11 January 2024