Version: 1.0.0 | Published: 13 Feb 2025 | Updated: 297 days ago
White Swan UK Immunology Online Patient & Public Conversations Dataset
Dataset
Documentation
Associated Media:
Description:
The dataset contains anonymised patient and public conversation which has taken place online regarding immunological diseases. An extensive list of conditions have been curated, for example, the largest data samples include asthma, allergies (including hayfever, food, drug and other allergies), polymyalgia rheumatica, HIV, autoimmune thyroiditis, celiac disease, lupus , hives, type 1 diabetes, rheumatoid arthritis, lymphedema, graves, LADA, ulcerative colitis and ankylosing spondylitis.
Due to immunological involvement in disease being varied, condition parameters can be adjusted in future data collection.
Coverage
Spatial:
United Kingdom
Typical Age Range:
0-112
Provenance
Origin
Purposes:
Research cohort
Sources:
Free text NLP
Collection Situations:
Other
Temporal
Accrual Periodicity:
Irregular
Distribution Release Date:
01 March 2023
Start Date:
01 February 2023
Time Lag:
1-2 months
Accessibility
Access
Access Rights:
In Progress
Access Service:
On Request
Access Request Cost:
On Request
Delivery Lead Time:
1-2 months
Jurisdictions:
UK
Data Controller:
White Swan
Data Processor:
White Swan
Usage
Data Use Limitations:
Project-specific restrictions
Data Use Requirements:
Project-specific restrictions
Resource Creators:
White Swan is a registered charity in England and Wales (1176486) improving health and wellbeing through AI technology and analytics.
Format and Standards
Vocabulary Encoding Schemes:
- LOCAL
- HPO
- OTHER
Conforms To:
- OTHER
- LOCAL
Languages:
en
Formats:
- csv
- xlsx
- web page explorer
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on "healthunlocked.com/pmrgcauk".
76742
Unique online names indicating number of persons
01 February 2025