Version: 1.0.0 | Published: 30 Apr 2025 | Updated: 221 days ago
Sarcoidosis
Dataset
Documentation
Description:
Idiopathic Pulmonary Fibrosis (IPF) is a type of complex lung disease that affects roughly 50 in every 100,000 people. It causes the lungs to become scarred, leading to severe breathlessness and coughing, and owing to a lack of effective medicines and treatments, it currently has a survival time worse than most cancers. Applying cutting-edge AI tools, to unlock insights from existing IPF patient data, could help extend the lives of thousands of UK patients each year.
Coverage
Spatial:
International
Provenance
Temporal
Accrual Periodicity:
Static
Start Date:
01 September 2022
Time Lag:
2-6 months
Accessibility
Access
Access Rights:
Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)
Access Service:
Data Request Process - West Midlands Secure Data Environment
(https://westmidlandssde.nhs.uk/research/data-request)
Access Request Cost:
Please email wmsde@uhb.nhs.uk
Delivery Lead Time:
2-6 months
Usage
Resource Creators:
SDE031
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
SQL