Version: 0.0.5 | Published: 26 Jul 2023 | Updated: 666 days ago
Documentation
Associated Media:
Description:
CPRD Aurum linked Cancer Patient Experience Survey (CPES) data include information from patients who have responded to the CPES about their cancer journey from their initial GP visit prior to diagnosis, through diagnosis and treatment and to the ongoing management of their cancer.
Is Part Of:
CPRD Aurum
Coverage
Spatial:
England
Typical Age Range:
0-115
Follow Up:
OTHER
Physical Sample Availability:
NOT AVAILABLE
Pathway:
Cancer registration data are collected from a range of health care provider
systems and other services.
Provenance
Origin
Purposes:
- CARE
- DISEASE REGISTRY
Sources:
ELECTRONIC SURVEY
Collection Situations:
- IN-PATIENTS
- OTHER
Temporal
Accrual Periodicity:
QUARTERLY
Distribution Release Date:
11 December 2020
Start Date:
01 January 2010
End Date:
31 December 2018
Accessibility
Access
Access Rights:
Access Service:
Access to patient level data is dependent on approval of a study protocol by the
Independent Scientific Advisory Committee (ISAC). All required linked data
sources must be requested on the application form. Additionally, researchers who
are first time users of a linked dataset must contact the CPRD Observational
Research Team to discuss their requirements before submitting their application.
Data are only provided by CPRD when part of a data extract is linked to CPRD
GOLD. https://www.cprd.com/linked-data
Access Request Cost:
Jurisdictions:
GB-ENG
Data Controller:
CPRD
Data Processor:
CPRD
Usage
Data Use Limitations:
- GENERAL RESEARCH USE
- NO LINKAGE
- RESEARCH SPECIFIC RESTRICTIONS
- RESEARCH USE ONLY
Data Use Requirements:
- GEOGRAPHICAL RESTRICTIONS
- INSTITUTION SPECIFIC RESTRICTIONS
- PROJECT SPECIFIC RESTRICTIONS
- TIME LIMIT ON USE
- USER SPECIFIC RESTRICTION
Resource Creators:
Public Health England (PHE) via the National Cancer Registration and Analysis Service (NCRAS)
Investigations:
Format and Standards
Vocabulary Encoding Schemes:
OTHER
Conforms To:
OTHER
Languages:
en
Formats:
Tab delimited text
Enrichment and Linkage
Derivations:
N/A
Origin
Name:
SDE Home