Version: 1.0.0 | Published: 7 Apr 2025 | Updated: 244 days ago
White Swan UK Oncology Online Patient & Public Conversations Dataset
Dataset
Documentation
Description:
The dataset contains anonymised patient and public conversation which has taken place online regarding over 50 cancer types (This includes cancers most commonly experienced and rarer types).
The curation of the dataset is based on specific cancer types and cancer patient forums. It is not based on every social post about cancer within the online sources, which is often irrelevant to the patient experience.
Coverage
Spatial:
United Kingdom
Typical Age Range:
0-112
Follow Up:
Other
Provenance
Origin
Purposes:
Research cohort
Sources:
Free text NLP
Collection Situations:
Other
Temporal
Accrual Periodicity:
Irregular
Start Date:
01 March 2023
Time Lag:
1-2 months
Accessibility
Access
Access Rights:
In Progress
Access Service:
On Request
Access Request Cost:
On Request
Delivery Lead Time:
1-2 months
Jurisdictions:
UK
Data Controller:
White Swan
Data Processor:
White Swan
Usage
Data Use Limitations:
Project-specific restrictions
Data Use Requirements:
Project-specific restrictions
Resource Creators:
White Swan is a registered charity in England and Wales (1176486) improving health and wellbeing through AI technology and analytics.
Format and Standards
Vocabulary Encoding Schemes:
- LOCAL
- OTHER
- HPO
Conforms To:
- OTHER
- LOCAL
Languages:
en
Formats:
- csv
- xlsx
- web page explorer
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on "https://healthunlocked.com/lungcancer".
118984
Unique online names indicating number of persons
16 April 2025