Version: 1.0.0 | Published: 19 Feb 2025 | Updated: 374 days ago
Documentation
Description:
The goal of this study is to understand current standard of treatment in a real-world setting for IPF and PPF. Additionally, the study will characterise the patient populations by assessing the demographic and baseline clinical characteristics, diagnosis pathways, natural history of the conditions under current treatment patterns, and clinical outcomes. Moreover, the risk factors for disease progression will be explored, with particular interest in the relationship between the forced vital capacity (FVC) decline and mortality.
Coverage
Spatial:
West Midlands
Provenance
Origin
Purposes:
Care
Sources:
EPR
Collection Situations:
- Clinic
- Community
- Prescribing - Community pharmacy
- Prescribing - Hospital
- Secondary care - Accident and Emergency
- Secondary care - ICU
- Secondary care - In-patients
- Secondary care - Outpatients
Temporal
Accrual Periodicity:
Static
Distribution Release Date:
13 January 2026
Start Date:
01 January 2021
End Date:
31 December 2023
Time Lag:
Variable
Accessibility
Access
Access Rights:
Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)
Access Service:
Data Request Process - West Midlands Secure Data Environment
(https://westmidlandssde.nhs.uk/research/data-request)
Access Request Cost:
Please email wmsde@uhb.nhs.uk
Delivery Lead Time:
Variable
Jurisdictions:
GB
Usage
Data Use Limitations:
Research use only
Data Use Requirements:
- Project-specific restrictions
- User-specific restriction
Resource Creators:
This publication uses data from WMSDE, an ethically approved NHS Secure Data Environment (NRES Reference 24/YH/0022)
Format and Standards
Vocabulary Encoding Schemes:
- ICD10
- OPCS4
- SNOMED CT
Conforms To:
- LOCAL
- NHS DATA DICTIONARY
Languages:
en
Formats:
SQL