Version: 1.0.0 | Published: 19 Feb 2025 | Updated: 291 days ago
Rare Disease
Dataset
Documentation
Description:
Rare Disease data for 22,000 patients with over 100 different diseases.
Coverage
Spatial:
West Midlands
Provenance
Temporal
Accrual Periodicity:
Static
Start Date:
01 January 2011
End Date:
30 November 2024
Time Lag:
2-6 months
Accessibility
Access
Access Rights:
Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)
Access Service:
Data Request Process - West Midlands Secure Data Environment
(https://westmidlandssde.nhs.uk/research/data-request)
Access Request Cost:
Please email wmsde@uhb.nhs.uk
Delivery Lead Time:
2-6 months
Usage
Resource Creators:
SDE093
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
SQL
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
22,000 patients multimodal data- national dataset.
22000
Count
20 February 2025