Version: 1.0.0 | Published: 18 Feb 2025 | Updated: 292 days ago
HCM
Dataset
Documentation
Description:
The SOLENOID project, short for PredictorS Of cLinical outcomEs iN hypertrOphIc carDiomyopathy, which has a primary aim to enhance the prediction of disease progression in patients with hypertrophic cardiomyopathy a prevalent inherited heart condition affecting approximately 1 in 500 individuals.
Coverage
Spatial:
International
Provenance
Temporal
Accrual Periodicity:
Static
Start Date:
01 January 2023
Time Lag:
2-6 months
Accessibility
Access
Access Rights:
Information Governance and Ethics - West Midlands Secure Data Environment (https://westmidlandssde.nhs.uk/information-governance-and-ethics)
Access Service:
Data Request Process - West Midlands Secure Data Environment
(https://westmidlandssde.nhs.uk/research/data-request)
Access Request Cost:
Please email wmsde@uhb.nhs.uk
Delivery Lead Time:
2-6 months
Usage
Resource Creators:
SDE022b
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
- SQL
- Unstructured
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
437 multimodal patient data (including echocardiograms).
437
Count
20 February 2025