Version: 1.0.0 | Published: 17 Feb 2025 | Updated: 376 days ago
Summary
DOI Name:
10.48532/006000
Documentation
Description:
Living in the UK. Willingness to register for brain donation, and take part in widely used clinical and psychometric measures until the time for brain donation comes. People with a diagnosis of dementia or MCI can register at any age, and those with no diagnosis of memory impairment can register from 65 years old. Exclusion criteria are largely practical and related to the suitability of the donated brain tissue for research. This includes a diagnosis that indicates another brain bank might be more suitable, such as multiple sclerosis. Pre-existing conditions such as schizophrenia, bipolar disorder, brain tumours (including previous radiotherapy treatment to the head), major strokes, aneurysms, and other significant cerebrovascular incidents, can mean a person may not be an ideal ‘control’, or the brain structure is significantly changed. Infections such as meningitis, encephalitis, HIV, prion disease pose an infection risk to all coming in contact with the tissue, so also prevent brain donation.
Coverage
Spatial:
United Kingdom
Follow Up:
Continuous
Provenance
Origin
Purposes:
Research cohort
Temporal
Accrual Periodicity:
Continuous
Start Date:
01 January 2009
Time Lag:
Not applicable
Accessibility
Access
Access Service:
The Data Portal runs its analysis environment through a virtual desktop
infrastructure accessible via VMWare software. By analysing the data in the
virtual desktop environment you are working on DPUK"s servers – meaning there is
no physical transfer of data to researchers. The processing capacity enables you
to work with large numbers of records and integrate these with the other data
modalities that exist in the DPUK cohorts. This solution also offers researchers
the freedom to conduct their analyses anywhere with an internet connection.
Data Controller:
Newcastle university
Data Processor:
Dementias Platform UK
Format and Standards
Vocabulary Encoding Schemes:
OTHER
Conforms To:
OTHER
Languages:
en
Formats:
CSV