Version: 1.0.0 | Published: 13 Feb 2025 | Updated: 380 days ago
Documentation
Associated Media:
Description:
The dataset contains anonymised patient and public conversation which has taken place online regarding 17 cardiovascular disease areas (including: arrhythmia & tachycardia, cardiopulmonary disease and heart failure) in the UK. The dataset is segmented by cardiovascular conditions and topics conversed about such as testing, imaging and emotional impact.
Coverage
Spatial:
United Kingdom
Typical Age Range:
0-112
Provenance
Origin
Purposes:
Research cohort
Sources:
Free text NLP
Collection Situations:
Other
Temporal
Accrual Periodicity:
Irregular
Start Date:
01 February 2023
Time Lag:
1-2 months
Accessibility
Access
Access Rights:
In Progress
Access Service:
On Request
Access Request Cost:
On Request
Delivery Lead Time:
1-2 months
Jurisdictions:
UK
Data Controller:
White Swan
Data Processor:
White Swan
Usage
Data Use Limitations:
Project-specific restrictions
Data Use Requirements:
Project-specific restrictions
Resource Creators:
White Swan is a registered charity in England and Wales (1176486) improving health and wellbeing through AI technology and analytics.
Format and Standards
Vocabulary Encoding Schemes:
- LOCAL
- HPO
- OTHER
Conforms To:
- OTHER
- LOCAL
Languages:
en
Formats:
- csv
- xlsx
- web page explorer
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Persons in this dataset are determined by the unique volume of chosen display names in the data. This is calculated per source (reddit, reviews, other forums), and then totaled together. In other forums and reviews domains persons may choose to denote themselves as anonymous. In this case, anonymous users are counted once per domain. For example, on "healthunlocked.com/vasculitis-uk".
64613
Unique online names indicating number of persons
01 February 2025