Version: 1.0.0 | Published: 10 Feb 2025 | Updated: 382 days ago
Documentation
Associated Media:
Description:
This corpus is a longitudinal dataset of speech from people living with multiple neurodegenerative disorders, and controls who do not report to have a neurolical condition, accompanied with detailed and contemporaneous clinical annotation.
Coverage
Spatial:
Scotland
Typical Age Range:
16-100
Follow Up:
Other
Pathway:
Follow-up length is variable. This data collection is still ongoing. Some
participants have contributed cross-sectionaly and others will have up to 2
years of follow-up.
Provenance
Origin
Purposes:
Study
Collection Situations:
Cohort, study, trial
Temporal
Accrual Periodicity:
Other
Distribution Release Date:
29 September 2025
Start Date:
01 June 2022
Time Lag:
Variable
Accessibility
Access
Access Rights:
Requestors should make contact withAnne Rowling Clinic <Anne.Rowling.Clinic@ed.ac.uk> to be directed to the correct pathway for the correct data access review comittee.
Access Request Cost:
Variable
Delivery Lead Time:
Variable
Jurisdictions:
UK
Data Controller:
The University of Edinburgh
Data Processor:
The University of Edinburgh
Usage
Data Use Requirements:
User-specific restriction
Format and Standards
Languages:
en
Formats:
- various
- csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Unique participants who have contributed to the dataset ( from across 5 cohorts - healthy, Multiple Sclerosis, Dementia, Parkinsons's disease, Motor Neuron Disease)
800
count
16 June 2025