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Version: 1.0.0 | Published: 8 Jan 2025 | Updated: 136 days ago

Scottish Linked Congenital Conditions Dataset (SLiCCD)

Dataset
FEEDBACK
CONTACT

Documentation

Associated Media:
https://publichealthscotland.scot/resources-and-tools/health-intelligence-and-data-management/national-data-catalogue/national-datasets/search-the-datasets/scottish-linked-congenital-conditions-dataset-sliccd/, https://publichealthscotland.scot/population-health/conditions-and-diseases/disease-registration/congenital-conditions-and-rare-diseases-registration-and-information-service-for-scotland-cardriss/congenital-conditions/what-are-congenital-conditions/
Description:
The dataset contains a list of all pregnancies ending in Scotland affected by a major congenital condition as defined by EUROCAT and CARDRISS.

Coverage

Spatial:
United Kingdom Scotland
Typical Age Range:
0-1

Provenance

Origin

Purposes:
Disease registry
Sources:
EPR

Temporal

Accrual Periodicity:
Annual
Start Date:
01 January 2020
End Date:
31 December 2020
Time Lag:
Not applicable

Accessibility

Access

Access Rights:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/services-we-offer/
Access Service:
Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Access Request Cost:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/cost-of-services/
Delivery Lead Time:
Not applicable
Jurisdictions:
UK
Data Controller:
Public Health Scotland
Data Processor:
Public Health Scotland

Usage

Data Use Limitations:
General research use

Format and Standards

Vocabulary Encoding Schemes:
NHS SCOTLAND NATIONAL CODES
Conforms To:
NHS SCOTLAND DATA DICTIONARY
Languages:
en
Formats:
text/csv

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
2000
31 December 2020

Origin

Name:
HDR UK
URL:
https://healthdatagateway.org
Link:
https://healthdatagateway.org/dataset/1032